Recommended Links

APPHON/ROHPPA has compiled a list of Cancer Patient Navigators (July 2017) for Nova Scotia, Prince Edward Island and New Brunswick

Recommended Websites for Childhood Cancers and Blood Disorders:

Today you can find an endless amount of information on the internet and it is helpful to remember that not all of the information you will find is accurate and reliable.  The best advice is to treat everything you find on the internet with caution, unless you know it is from a reliable website.   

We have provided a list of reputable online resources divided into two sections:

Pediatric Cancer Links For Patients and Families:
  • About Kids Health; Trusted answers from the Hospital for Sick Children
  • BC Children’s Hospital
  • Childhood Cancer
  • Cure Search
  • Children’s Oncology Group (COG)
  • IWK Health Centre for Women and Children
  • Parents’ Guide to Cord Blood Foundation
  • Pediatric Oncology Group of Ontario (POGO)
  • R Mission 2
  • Starlight Canada
  • Teens living with Cancer
  •  Understanding Childhood Cancer with Dr Geoff
  • Young Adult Cancer Canada (YACC)   
  • BC Cancer Agency
  • Canadian Partnership Against Cancer
  • Brain Tumour Foundation of Canada
  • Kidney Cancer Canada
  • Leukemia & Lymphoma Society (LLS)
  • Canadian Cancer Society
  • Canadian Virtual Hospice
  • Canadian Hospice Palliative Care Association (CHPCA)
  •  Living Lessons
Pediatric Cancer Links For Health Professionals: 
  • BC Children’s Hospital
  • Children’s Oncology Group (COG)
  • COG Survivorship Guidelines
  • Pediatric Oncology Group of Ontario (POGO)
  • BC Cancer Agency
  • Canadian Partnership Against Cancer
  • National Cancer Institute
  • Brain Tumour Foundation of Canada
  • Leukemia & Lymphoma Society (LLS)
  • Canadian Association of Psychosocial Oncology (CAPO)
  • Canadian Virtual Hospice
  • Canadian Hospice Palliative Care Association (CHPCA)
  • Living Lessons
  •  Nova Scotia Palliative Care Association
  • The Association of Pediatric Hematology/Oncology Nurses (APHON)
Blood Disorder Links for Patients & Families:
  • Centers for disease Control and Prevention
  • Consensus Statement on the Care of Patients with Sickle Cell Disease in Canada
  • Dolan DNA Learning Center
  • Sickle Cell Disease Association of America
  • The American Sickle Cell Anemia Association (A United Way Agency)
  • Saint Justine Leucan Information Centre
  • St Jude’s Hospital
  • Department of Pain Medicine and palliative Care: Stop Pain.org
  • KidsHealth from Nemours
  • Starlight’s Children’s Foundation
  • About Kids Health; Trusted answers from the Hospital for Sick Children         
  • Platelet Disorder Support Association for people with ITP   
Blood Disorder Links for Health Professionals:
  • Canadian Hemophilia Society
  • National Institutes of Health (NIH) National Heart, Lung and Blood Institute
  • Sickle Cell Information Center
  • National Institutes of Health (NIH) National Heart, Lung and Blood Institute –
  • Centers for disease Control and Prevention
  • Sickle Cell Disease Association of America
  • Department of Pain Medicine and palliative Care: Stop Pain.org